Pre-diagnosis
But not post-onset
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Pre-diagnosis
.
But not post-onset
.
I lost parts of my life
.
Because
.
something was wrong.
.
And it’s all a blur
.
Of fatigue and felled promises
.
Missed commitments
.
Overflowing laundry
.
Third day without a shower
.
Just wiped
.
Must be —
.
Oh it’s just passing
.
Stress
.
I’ve been stretched too thin lately
.
I’m too thin lately
.
I’m too fat lately
.
God I just want to collapse
.
Why does everything hurt
.
Is it supposed to hurt this bad???
.
Got canned again.
.
Annnnnd again.
.
My life, all my hopes like a mannequin
.
That’s supposed to all go on me, right???
.
Those clothes, those cute earrings
.
We’re supposed to be having fun in the sun
.
That cardboard background is supposed to be real
.
But I’m watching the simulation of me wear it
.
Like a phantom
.
Being sold back to me.
.
II.
.
I didn’t know anything was wrong with me —no,
I knew there was something wrong but I didn’t know
That what was wrong with me
wasn’t me
But something else
.
III.
.
Did having a label matter?
.
Let me put it this way:
.
Did designer suits ever save us?
.
IV.
.
A label is a billing category.
.
V.
I’m a luxury fucking good.
.
VI.
.
I had an ex who saw someone on YouTube with a different kind of what I have. They said, “yeah, she doesn’t have a lot longer to live….” and then,
glanced nervously at my knees
Concave curved as usual
And said “You sure you don’t have pain like that?”
What do you think I said?
.
VII.
.
My suffering has no point.
.
All those Brilliant Young Minds
.
Merely spun me in circles
.
Maxed out Medicaid and me
.
What lesson did the Spanish flu teach??
.
The only choices being made
.
Are how many people the rich are willing to let die
.
Before one of them catches cold and suddenly has to care
.
VIII.
.
I spend winters saying to myself
.
Surely this year
.
Every birthday I say
.
It’s gotta happen
.
I’m losing someone else’s race
.
But when it snows then everyone is stuck inside
.
something is changing
.
something is starting to scar
.
Insurance won’t cover the next test
.
I’m back on hold again
.
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Ooooof. That's some raw, powerful stuff and there is no emoji that approaches the reaction I had reading it... Amazing.
absolutely loved this. thanks for sharing